It is with great sadness the I have to tell you all that my hubby John passed away at 10am Thursday 15 August 2013.
He was very much loved by myself and all his family and will be greatly missed.
He is now pain free and at peace, I was with him but sadly our two daughters did not arrive in time, he has had a dreadful 2 years with firstly with his heart problems and this past year with his aggressive cancer.
Wednesday, 7 August 2013
I brought John home yesterday, the hospital sent him home with inadequate pain relief - only Paracetamol tablets and they were not touching the pain. He had had a very traumatic day yesterday and was really upset. They have drained in excess of 15 litres from his stomach so in that respect he is much more comfortable.
He is of course very weak with not eating very much but they have started him on the Hi energy and Hi Calorie Supplement drinks, Vitamin pills etc.
We had to call the Marie Curie nurse last night as he was in so much pain and they put us in touch with the Out of Hours doctor who faxed a prescription for strong pain killers for him to the late night pharmacy in Brid and our daughter picked them up brought them out. He had a couple at 10.30pm and was able to have a really good nights sleep. He has had some more this morning and has stayed in bed but I am hoping he will get up for an hour or two this afternoon.
We are just waiting for the District nurse to call to check his drain site and also the Doctor to review his pain relief.
He has an appointment in clinic in two weeks time so they are hoping we have got him build up a bit by then as they will then decide on what is the next course of action regarding treatment they will try.
Thanks for all your support.
Sunday, 4 August 2013
Today he saw his dedicated Oncologist and he was livid that the scan was not for 6 weeks, he gave him a thorough examination and said he wanted him in hospital, unfortunately there was not a bed today but we hopefully should hear tomorrow that there is one and I will then take him through.
Just got from another trip to the Hospital, John is really poorly. He got his scan date through for 3rd September, which is a long to off yet.
John is not too good at the moment, the heat is also taking its effect on him, we went back to the Oncologist last Tuesday and they think he should have another scan but not for 6 weeks, they say his blood results are OK so what is causing his present problems we are unsure. He is not eating as well, some day he hardly eats much at all which is a worry as they say he is very constipated and needs to drink more and of course wait to get things moving. They have given him some new tablets which I think are now starting to work as today he actually felt like going out and doing some work instead of just sitting about. So hopefully things may be looking up a bit for him.
He has a build up of fluid in the abdominal cavity which is putting his intestines, stomach, lungs etc under a lot of compression. So much so that he cannot eat and can only drink small sips of water. They plan to drain this fluid off and do the scan whilst he is in hospital and hopefully start him on some more treatment.
If he deteriorates further during the evening of overnight I have to phone straight away.
He is totally exhausted now so has gone to bed.
I suppose we are just impatient but we wished they could more a bit quicker with things. I know they have a certain procedure to follow but he is in so much discomfort whilst all this is going on.
They have already drained 4.5 litres if fluid from his abdomen and will take another 3 today but this has to be taken off slowly so as not to affect his blood pressure. He is still not eating properly but it is a case of trying to tempt him with food.
I will keep you posted on his progress which I think is going to be slow.